Good News

Hello Everyone!

Today brings some good news. Lily is getting her arterial line taken out. The doctors ordered some more blood tests and as soon as they are drawn, the line comes out. That means that we can start to hold her now.

Also, this means that the doctors do not think that Lily will need emergency drugs if and when her PDA closes. This is awesome! The doctors also think that Lily's PDA is so small that if there were going to be any adverse effects they would have already happened.

Ok...now for other news. Lily may have Noonan Syndrome. Here is a link to find out more:
http://www.medicinenet.com/noonan_syndrome/article.htm

Blood was drawn for testing today, and we will have to wait 4-6 weeks for results.

The doctors are also talking about moving Lily out of the NICU to another unit. They are still formulating a plan and we should find out by tomorrow what they are planning on doing.

Lily doesn't have to be under the light any longer either! Woo hoo! Her bilirubin levels are coming down. So, no more sunbathing for Lily. :)

Also, Lily has a feeding tube again. Her heart rate is up and they think it is best to feed her by tube because nippling can also cause her heart rate to rise. The tube is not a bad thing, only a necessary thing for right now. She will probably be off the tube feeding soon.

Thats all I know for now. Please keep the prayers and good thoughts coming. Stress levels are high around here and we need the positive vibage.

Love to all,
Barb