However, babies that have the Norwood surgery can have serious changes very quickly.
Ten minutes after they brought Lily back to her room she went into cardiac arrest. The nurse immediately started CPR and the surgeon, Dr. Rodefeld, came right down to assist Lily. They did compressions for an hour and a half and then put her on life support (ECMO). The ECMO machine oxygenates and circulates Lily's blood for her.
Because she was on manual compressions for so long there is a chance for brain damage or a brain bleed. They will be doing an ultrasound on Lily's brain later today. Also, there is a chance that she could have a stroke or a seizure. She is in very serious condition, and there is a chance that she will not be strong enough to make it.
Her heart did start to beat again, and they are still in the process of getting her stable. There are two nurses by her bedside 24 hours a day now. Also, there are doctors, nurse practitioners and other medical personnel right outside her door.
This is going to be a minute by minute, hour by hour, day by day rollercoaster for the next couple of days.
Her is a picture of Lily right before her surgery:
Please keep us all in your thoughts and prayers.
Love to all,
Barb
3 comments:
I came accross your Lilly through a google search. She is beautiful and I pray she will be strong enough to hold soon. My daughter is a cardiac baby who spent a lot of time in the hospital too. I just wanted to let you know our prayers are with Lilly and your family.
Barb, Danny and Jennifer,
It was so good to see you all and meet our little Lilly, finally.
I love you all and am a phone call away, if any of you need anything.
Much love,
Wendy
When we came to see little Lilly yesterday, I was glad to see her looking so peaceful through all of this... it has been a difficult road for her and for all of you. Just have faith that things will turn out as they were meant to... the god(s) are clear with their plan... they just haven't let us know what it is yet. Lilly will be okay with it no matter what. :)
Our thoughts are always with you...
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