Sunny Saturday

First I want to thank my bestest friends Wendy and Mary for coming down last night and restoring some of my sanity. I am so grateful for such awesome friends. I love you!

Saturday brought some new changes. Lily has been having "episodes" that they thought were seizures. They did an EEG and found out that they aren't seizures and that her brain function is lower than expected. This may be due to either the amount of meds she is on, the procedure, the ECMO, or she has brain damage. They will be doing another EEG at the end of the week. I am planning on staying down in Indy as long as Lily is on the ECMO machine. She is in very critical condition right now and I don't want to take the chance that something could happen and I wouldn't be here for Jennifer and Lily. Here are some pictures of the ECMO and little Lily:
She has a lot of lines running in and out of her right now. You can see the lines that carry the blood to and from her body to the ECMO machine. Lily is the 641st child to be put on ECMO here at Riley's. They have parties twice a year for the kids who have been on ECMO. It is encouraging to read the success stories from other families who have had a child/grandchild on the ECMO.

Here is another shot of the ECMO:










To me, it is amazing that this machine can oxygenate, warm, pump, breathe for Lily. Wow!

Here is another picture of our little princess:
















Dan, Mandy, Andrea, Allison, and Alexa came down to visit today. They took us out to a tasty dinner at Applebees. Yum! Here is a wonderful picture of them:

It is so wonderful having such supportive loving family. We are truly blessed. And they're cute!

Thanks again to everyone who is praying for Lily and us. It really helps. Thanks to our friends and family whose support is invaluable. Words alone can not tell you how much you all mean to us and how much you are helping us. And a big thank you to my wonderful husband Danny. I love you.

Love to you all,
Barb